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FOR IMMEDIATE RELEASE: October 9, 2009
CONTACT: Bob Decheine, 202-225-5061; 202-550-7869 (cell)
(Washington, D.C.) – On Thursday, October 8, 2009, Congressman Steve Rothman (D-Fair Lawn) met with members of the Tri-State, Inc. Chapter of the Scleroderma Foundation, a group that represents the States of Connecticut, New York and New Jersey. Foundation representatives commended the Congressman for co-sponsoring H.R. 2408, the Scleroderma Research and Awareness Act. If passed, this legislation would increase Scleroderma research and support public education efforts to raise awareness about the disease, initiatives to which Rothman is strongly committed.
The Scleroderma Foundation is a national non-profit advocacy group that works to raise both public awareness of and funding for research related to Scleroderma. Scleroderma is a chronic and disabling connective tissue disease that involves changes in the skin, blood vessels, muscles and internal organs. Close to 300,000 people in the United States alone currently deal with this disease. The exact cause of Scleroderma is unknown and, no cure has yet been discovered. For these reasons, it is vital that funding for research remain a priority until answers can be found.
From L to R: June Bender, Bruce Cowan, Helen Polenz, Rep. Rothman, Ruth Saphirstein and Emily Chilino
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